Tag: death

  • 4 Powerful Lessons from a Life Well Lived

    4 Powerful Lessons from a Life Well Lived

    Lori and Grammy

    “We must each lead a way of life with self-awareness and compassion, to do as much as we can. Then, whatever happens we will have no regrets.” ~Dalai Lama

    This year on June 4th, one of my greatest heroes passed away.

    I’d been planning to travel back to Massachusetts mid-month for my sister’s bridal shower, but I learned at the end of May that my grandmother was in the hospital.

    I knew she’d been in rehab since she’d fractured her hip, but I didn’t know she’d gained 30 pounds of water weight and her kidneys would soon fail her.

    After my family told me it didn’t look good, I came home on the red eye on the 2nd, hoping to hear her voice one last time. She was too medicated to speak when I arrived, but I was able to sit with her and more than a dozen of my family members for all of June 3rd.

    There were so many of us there, unwilling to leave her side, that the hospital staff opened the adjoining room, where we set up a table with cold cuts and sub rolls for lunch.

    It was exactly what she would have wanted, and a testament to the legacy she left behind: Her huge, loving family stayed there, together, offering her the love and strength she’d given us for years.

    My mother asked me to write and deliver her eulogy—which was both a challenge and an honor. She’d touched so many people’s lives, including mine, and in that moment no words seemed sufficient.

    I feared I wouldn’t do her justice, but I knew that if she were still around she’d be proud of me, no matter what I wrote.

    I am who I am in large part because of my Grammy, Jeanne Santoro (and her late husband Henry “Grandpa Joe” Santoro, to whom I dedicated my book).

    So now I’d like to share with you some of the lessons that have stuck with me the most. Grammy, you taught me that…. (more…)

  • Growing from Pain and Using it to Discover Who You Are

    Growing from Pain and Using it to Discover Who You Are

    “Life’s challenges are not supposed to paralyze you; they’re supposed to help you discover who you are.” ~Bernice Johnson Reagon

    At the age of 37, my beautiful young mother, who I considered my best friend, crashed her car in light rain just around the corner from our home. We will never know what really happened because she woke up from her brain injury a very different person from the one who drove away that morning.

    The experience of suddenly becoming a caregiver at the age of 16, along with my 13 year-old brother and the rest of our family, could fill the pages of a how-to manual. I could have benefited from reading something like that during those long years, when we all struggled to adjust to our new reality.

    Five years into this new life, our mother was diagnosed with advanced breast cancer, something that she did not fully comprehend because of her condition. Of course it was all too real for the rest of us, and, despite her continued resistance to the cancer, it eventually took her from us.

    The ability to look back on a tragedy, a loss, a challenge of any sort and see through eyes that have healed, a heart that has been broken and patched up—this is the ability to grow and become a person who is shaped by the darkness.

    It is hard—so, so hard. At times we may want to swat the well-meaning reminders of life like an annoying little insect in our face, close our eyes and our hearts to the new possibilities, and just sit in our paralysis. It’s certainly much easier to do that.

    As we know, though, it is not the easy path that leads to the great discoveries.

    We discover our real selves on the frightening, unknown path that pushes us outside of the places that feel safe and familiar.

    It was a path that I resisted and resented for so long. Brain injury, cancer—it was all too much for me to really comprehend when all I wanted to do was fit in with everyone around me and live the life of a normal young adult.

    Looking back I can see the stages of grief so clearly. I ached to stay in the place of denial for as long as possible because I found some comfort there.

    The hospital visits, chemo, surgeries, and watching on as the person who’d taken over my mother’s fragile body was slowly fading away—it was like I was walking in a dream most of the time, watching on from far away as my family fumbled through all of this.

    I managed to resist the new reality for many years. My body was there at the appointments, in the house cooking meals, and trying to help where possible, but my mind was somewhere else. (more…)

  • Finding Positive Ways to Express Difficult Emotions

    Finding Positive Ways to Express Difficult Emotions

    “Never apologize for showing feelings. When you do so, you apologize for the truth.” ~Benjamin Disraeli

    Each day, month, or year I want to be something different when I grow up. At some point I want to open up a smoothie truck with a best friend, I want to teach yoga to cancer patients, and I want to travel to Australia and become a bartender just to support myself.

    But more so than what I want (or think I want) to be, I know what I am. I am a wife, a sister, a friend, an Egyptian, a listener, a weirdo, a poet, a marketer, a dog mom, and a wannabe yogi.

    But most of all? I am emotional.

    I am so emotional at times that my husband comes home to an inconsolable wife sitting alone on the couch crying. And what has set me off into this uncontrollable fit, you may ask? Some kid in a commercial misses his dad who is on a business trip, and (thanks to Skype services) he gets his bedtime story from 3,000 miles away. Sad? Yes, I know.

    Sad, but common. I have emotional friends. I also have completely apathetic friends. I love them. They are completely real with me when I get out of hand and help bring me back to earth.

    Something I just can’t help but get emotional over is death.

    It’s funny because I don’t have a problem with my own death. I could talk about that for days—how it’s going to happen, when I think it will happen, anything, until my husband tells me he doesn’t want to hear about it anymore and leaves the room.

    My grandparents along with many members of my family live in Egypt. I went to Egypt every other summer since I was born. I looked forward to seeing my cousins, the beaches, my aunts—everyone, but specifically my grandfather. I am my grandfather’s favorite grandchild (his words, not mine). (more…)

  • 9 Lessons on Loss, Forgiveness, and Healing

    9 Lessons on Loss, Forgiveness, and Healing

    “Forgiveness does not change the past, but it does enlarge the future.” ~Paul Boese

    I’m trying to meditate but I find myself overcome by sadness; I’m still grieving after all this time.

    I’ve gone through phases of forgiveness recently that have shown me how to acknowledge the painful relationship I had with my mother, the anger and resentment we shared, and the loss of each other that we both went through the older we grew. Maybe it’s not as bad as that, but it feels like it.

    My reflections have brought me closer to the woman who I never took the time to understand because we were both so volatile and weighed down with our problems; I’d shuddered when my family would say “You’re just like Mum,” but now I smile because I see how true it is.

    I yearn for a stable life, just like her; I live with chronic illness, mental and physical, just like her; I escape into creativity, just like her.

    We differ too.

    I’ve decided to do something about my anger. I’ve taken steps to open my heart. I’ve learned to forgive and be forgiven. One thing I’ve not done yet is grieve. I lost my Mum.

    I lost her gradually through my life in that I didn’t ever feel like we were mother and daughter, more two people living together who spent every day treading carefully, trying to avoid eye contact and arguments.

    And then four years ago she died. She’d been sick for a long time and I knew it was coming. I’d prepared myself from a very young age for that cold January afternoon, for when I’d hear the news that she was dead. I was at once free and cut loose.

    I lost the person who, if I had only opened myself up, would have protected me to all ends, even if she didn’t understand what I was going through. (more…)

  • Choose Love, Choose Life

    Choose Love, Choose Life

    “I believe that every single event in life that happens is an opportunity to choose love over fear.” ~Oprah Winfrey 

    Facing fear came in the form of the death of my father in 1997. He was diagnosed HIV positive and at the time, the world saw this as a death sentence, and so it was.

    His goal became to find a level of peace, a level of contentment about what was happening to his body, his mind, and in his soul in preparation for leaving this life. He enlisted my help to choose when and how to die.

    I made the commitment to help him die with grace and dignity, in our home. That process took five years with many ups and downs. The final letting go happened while lying next to him in his own bed.

    He drew his last breath and simply let go, peacefully. “We” were successful in creating a space for his passing to be perfect for him, exactly as he chose it to be.

    That was the hardest thing that life had ever “asked” me to do. The aftermath of that single event had drastically changed my life. Initially, it was not for the better, as it created in me a need to protect myself against ever feeling the pain of letting go of someone I love that much.

    It has been a double-edged sword. I found myself in tremendous fear—fear of having what I want and losing it. It has been a very long journey for me. I’ve struggled to let go of the belief that if I have someone in my life who I love so completely, they will “leave.” My commitment to not feel that pain ever again has been a huge hurdle for me.

    It was this year, on my 49th birthday that I “met again” the woman I believe with my whole heart I am meant to share the rest of this journey with. I say met again because she showed up in my life as a woman I have “known” for approximately 20 years. She was completely and utterly unexpected!

    I have let go of the protective armor around my heart with the help of a very talented life coach. I find myself trusting that should she “leave,” I have it in me to let go with grace. I trust myself to love completely, again. In return, I attracted into my life a woman that has completely opened her heart to me.

    Because I took the risk of opening up, I will now get to live with her in Wimberley, Texas, where I’ve always wanted to live.

    Even more miraculous, I can now work with a mental health organization there that supports one of my greatest missions in life: to cure mental illness, not just manage the symptoms. I feel it is part of my life’s purpose to share the Ho’oponopono practice of releasing limitations—and I may not have stumbled into this specific opportunity if I didn’t learn to open my heart.

    I am giving up every last shred of “security” I have worked so very hard for, to face my fears. I will not die never having lived and experienced love because of my fears.

    ….and this is what I know: (more…)

  • Living Like You Were Dying

    Living Like You Were Dying

    Happy

    “One day your life will flash before your eyes. Make sure it’s worth watching.” ~Unknown

    A professor once told my class, “In order to live your life to the fullest, you must think about your death every day.”

    At the time, I felt too busy to think about my death because I was consumed with law school applications and endless deadlines. But the words came creeping up to haunt me one day.

    After I graduated, I moved to Boston to work at a law firm downtown before attending law school the following year. I wanted to be a lawyer because I thought it would be a lucrative, challenging career, allowing me to live what I thought would be a “fulfilled life.”

    At first, I was thrilled to be a full-time employee at a law firm, but as time passed, I realized that it didn’t make me happy. And I was surprised. For so long I thought it was what I was meant to accomplish. It was hard to consider that perhaps it wasn’t the right path for me.

    I just wasn’t happy at my job. I felt like I was missing the days and living for the weekends. I worked eleven hours a day, I never saw my friends, and my relationship was crumbling.

    I expressed this issue to many of my coworkers, and most of them said something along the lines of, “That’s life.”

    Still, I felt certain the “real world” didn’t have to make me feel so unhappy and unfulfilled. I also knew that it might be hard to change directions, but if I didn’t, I would never feel any different.

    Suddenly, like a ton of bricks, my professor’s words came to me, and for the first time I thought about death.

    Immediately, I thought of my Uncle David who died when I was younger. David was living in Los Angeles, pursuing a career as an actor. When I reached middle school, he died of AIDS. He was thirty-eight years old.

    Being young, I had always thought about how his death affected my family, particularly my grandmother, but I’d never thought too much about what things were like for him before he died. (more…)

  • Navigating Loss: Dealing with the Pain and Letting Go

    Navigating Loss: Dealing with the Pain and Letting Go

    “It isn’t what happens to us that causes us to suffer; it’s what we say to ourselves about what happens.” ~Pema Chodron

    I remember when I first read the pathology report on my patient, Mr. Jackson (name changed), my stomach flip-flopped. “Adenocarncinoma of the pancreas,” it said.

    A week later, a CT scan revealed the cancer had already spread to his liver. Two months after that, following six rounds of chemotherapy, around-the-clock morphine for pain, a deep vein thrombosis, and pneumococcal pneumonia, he was dead.

    His wife called me to tell me he’d died at home. I told her how much I’d enjoyed taking care of him, and we shared some of our memories of him. At the end of the conversation I expressed my sympathies for her loss, as I always do in these situations.

    There was a brief pause. “It just happened so fast…” she said then and sniffled, her voice breaking, and I realized she’d been crying during our entire conversation. “I’m so sorry for your loss,” I told her again. She thanked me for caring for her husband and hung up.

    I’d known Mr. and Mrs. Jackson for almost seven years and had always liked them both immensely. I thought the world a poorer place without Mr. Jackson in it and found myself wishing I’d done a better job of consoling his wife, thinking my attempts had been awkward and ineffective. I reflected on several things I wished I’d said when I’d had her on the phone and considered calling her back up to say them.

    But then instead I wrote her a letter. (more…)

  • How to Deal with Pain and Uncertainty

    How to Deal with Pain and Uncertainty

    “The human spirit is stronger than anything that can happen to it.” ~C.C. Scott

    A blueberry muffin, that’s the last thing we spoke about before she went under.

    I didn’t know it then, but it was to be the final conversation my (middle) daughter and I would have for a very long time. I was trying to distract Nava by talking about food; in this case, the promise of the rest of her muffin when she came back from the bronchoscopy.

    We were thrown a steep curve ball out of left field when Nava went for an exploratory procedure and ended up on a respirator in a drug-induced paralyzed coma. 

    Almost three months later, miraculously, she was slowly awakened, but not to any muffin; rather, to a  life that would require a strength of spirit, body, and soul unlike anything we could’ve ever imagined.

    Nava was in an uphill battle to rebuild her life, muscle by muscle, limb by limb, as she relearned and reclaimed each bodily function.

    Her spirit, attitude, and disposition carried her through this torturous climb and that carried me through, as well.  You could say I piggybacked on my daughter’s positive, brave, fighting spirit.

    What do you do when your feet are jello, the ground is mush, and you’re drowning in a dark abyss of unknowns, amidst horrific pain and suffering? How do you begin to grope along the edge and regain some sense of grounding? (more…)

  • Embracing the Moment When it Sucks: Dealing with Death

    Embracing the Moment When it Sucks: Dealing with Death

    “Hope is the feeling that the feeling you have isn’t permanent.”  ~Joan Kerr

    A year ago I lost my best friend of forty-eight years to a pulmonary embolism. It came quickly and unannounced, and it took him instantly.

    I found out about his death on Twitter. Because of the length and depth of our friendship I had never known life without him. As often happens when we lose someone dear, I didn’t know how I would move forward.

    We’re taught that peace and happiness come from embracing and living fully in the moment, but I often wonder what should we do when the moment sucks. How do we embrace the pain of heartbreaking loss without suffering anger and sorrow?

    I don’t know that you can entirely. What my year without Blake has taught me is that to live in the moment, I really have to do just that, whether the moment sucks or not.

    During the first weeks after his death I allowed myself to wallow in my misery, yet at the same time I took action. I didn’t just feel the pain; I did something about it. I responded to it, I listened to its needs, and gave it voice. (more…)

  • Make Now Count: How to Live a Fun Life Full of Possibilities

    Make Now Count: How to Live a Fun Life Full of Possibilities

    “Pain is inevitable.  Suffering is optional.” ~Unknown

    My daughter Nava suffered a medical crisis and was hospitalized for one year. She was in a drug-induced, paralyzed coma on a ventilator for three months, teetering on the seesaw of life and death, much closer to the death side.

    Miraculously surviving, she moved on to a rehab hospital for the next nine months where she had to relearn each and every body and motor function. Two miracles occurred: one, she survived; and two, she had a complete recovery, with her life back as before.

    Because I have my daughter back, whole and intact, I feel like I’ve been given a second lease on life.

    I live my life with zest, fervor, and a sense of urgency. There’s nothing like bearing witness to the fragility of life to make one live better.

    Despite the pain, hardship, adversity, and challenges that life dishes out, we have to find and create the good. (more…)