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Sharing my pain

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  • #177717
    Anonymous
    Inactive

    Hi Paul, I’m so sorry for your pain. This is not my area of expertise as far as your medical issues, but I do have a friend that was in severe pain for two years. She went to a special program at Stanford for pain management using a mental process instead of drugs. Check to see if this info might help. https://stanfordhealthcare.org/medical-clinics/pain-management/programs-services.html

    I applaud your efforts to be present and loving to your wife and girls. Don’t worry about shielding them from your condition, but I agree it is protective to cry in private. They love you. They want 5he best for you. Please do not lose hope. Try (if possible) to compartmentalize the pain so you can free up a space for hope. All is not lost.

    I do know many people with your problems but none with all of them! I can’t even imagine. Again this is not my expertise, but these questions come to mind: Have you asked about a nerve block? Have you had spine surgery? Stenosis, herniated disks and spurs can be greatly improved. Have your doctors tried a Medral does pack (short dose steroids)? Do you take supplements? Ask your doctor if high dose vitamins d3 would help/be safe. Also for your knees ask about synovisc injections. Arthroscopic surgery can help a lot to delay replacement.

    Sending you a gentle hug and best wishes for healing.

    #177725
    Paul
    Participant

    I appreciate your kind words, I would never insult any forum without first exchausting everything available to me :  medicine,  nerve medicine, depression meds, physical therapy to last two people a lifetime.. knee/ hip injections,and now my personal favorite I’m on my final back epideral injection on November 20… after that I have a scheduled appointment for a back surgeon.. I have had both hips replaced  but I’m a little nervous about any augury on my back.. but me and my wife will see I suppose.. I also have added a psychitrist to help me deal with depression created by pain and a therapist!  All of this has been demanding on my family and myself! I would think if I didn’t exhausted everything medically available to me…I would be basically a complete whiner…plus honestly as much as people make a big deal out of it… I’m not the biggest fan of taking all this medicine! Again I appreciate your kind words and the most important thing is I would never ever be able to do half these things without the love and support of my wife and children….when you have chronic pain it’s not just hard on myself but just as hard on the people around me! My wife again is angel/ saint like..she has seen me at my best and absolute worst.. and along the way makes me feel like I the most impotant person in the world!

     

    #177727
    Paul
    Participant

    Sorry about the spelling, I’m polish and suck at typing! And being polish I have the typical sausage fingers that associate the horrible typing skills on my phone!

    #177731
    Anonymous
    Guest

    Dear Paul:

    It is heart breaking to read about your pain. I am so sorry that this is your reality. And all this is a result of playing football for twelve years? I wonder if you were injured playing football, then continued to play in spite of the injuries… what was the progression of injuries and playing during those twelve years?

    Did doctors during those twelve years suggest you stop playing…?

    I was wondering, when having chronic physical pain as you do, and from multiple locations in your body.. do you feel the pain every second or are there breaks, seconds or minutes when you don’t feel any pain?

    anita

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