I don’t have children but one thing seems clear…you guys need a BREAK. There must be someone, somewhere who you can trust so that you can rebuild your greatest asset and strength, your relationship with your husband. You are exhausted. He is exhausted. Together, you are exhausted. If you ignore love, it will go away. While I respect and appreciate the sanctity of parenthood, I’m sure you understand that your relationship must come first. Can you simplify the other aspects of your life…downsize the house/chores, reprioritize. Is there someone who can watch your daughter for even an hour or two so that you guys can relax together, even sleep together just holding or go get a meal or coffee? Have a date? 30 minutes? Can you enlist a health care social worker through the doctor or hospital to help you find a support group wherein you might enlist the help of other people in your shoes?
I don’t think this situation is going to be any easier for either of you if you lose the only thing you have aside from your daughter…and that is each other.
You are in my prayers.