Tiny Buddha

Tag: disability

  • The Beautiful Life I Didn’t Plan For: On Raising a Special Needs Child

    The Beautiful Life I Didn’t Plan For: On Raising a Special Needs Child

    “I’ve learned that you can keep going long after you think you can’t.” ~Unknown

    As far back as I can remember, I have always wanted to be a mom. I held onto the belief that my life wouldn’t feel truly “complete” until I had children.

    This dream finally came true in 2010 when I was twenty-seven years old, when my son, Logan Patrick Arnold, entered the world. The moment I laid eyes on him, I sensed something was different about him. And though it might not sound flattering, he looked more like a middle-aged man than a Gerber baby.

    Upon closer examination, the doctors discovered several abnormalities. Logan had upturned earlobes, and while some suggested it was due to his fetal positioning in my petite belly (I’m just 5’1″), deep down, I knew it wasn’t the case. Logan also exhibited an unusually pointed chin, a wide nose bridge, and eyes set farther apart than usual.

    People often speak of a mother’s intuition or maternal instinct, and mine kicked in at that moment. Something was wrong, and I knew it was serious. Although others may have shared similar thoughts, we all kept our concerns to ourselves, perhaps out of fear of the unknown.

    As the months passed, Logan failed to reach the typical infant milestones. His body remained rigid, and his tiny hands were perpetually clenched into fists. He couldn’t grasp toys or sit up on his own. Even as first-time parents, we understood that this wasn’t normal.

    Fast forward about nine months, and my husband was typing phrases like “upturned earlobes, wide nose-bridge, pointy chin” into a Google search. He exclaimed, “Jackie, you need to see this!”

    I had no idea what to expect on that screen, but I could never have imagined staring at a child who bore such a striking resemblance to Logan that they could have been siblings. It was an uncanny resemblance. I whispered, “That’s Logan.”

    My husband had stumbled upon a website displaying pictures of children with Mowat-Wilson Syndrome, a condition discovered by Dr. Mowat and Dr. Wilson in 1997, with only about 500 diagnosed cases worldwide.

    I clicked frantically to see more pictures. Every child could have been Logan’s sibling, sharing the same facial features and bone structures. We had found our answer.

    We searched for more information, which would change our lives forever. I distinctly recall reading the words “moderate to severe intellectual disability” and “non-verbal.”

    My heart sank. Did this mean my child would never speak, not even a simple “hello” or “I love you, Mama”? I was devastated.

    It’s often said that “life throws you curveballs,” but this was one I hadn’t expected and certainly wasn’t prepared for. The beautiful life I had envisioned for Logan was going to be nothing like the one I had planned.

    The years following Logan’s diagnosis were filled with doctor’s appointments, therapy sessions, school meetings, and anything else we could do to aid his progress and growth.

    Back then, we were merely trying to survive: eat, sleep (very little), work, and do everything we could for Logan, repeating the cycle endlessly. Looking back, I’m not sure how we made it through, but we did.

    And you know what? Our life is still beautiful.

    Logan is a thriving non-verbal thirteen-year-old who adores school and his sister Lucy and would cherish nothing more than cuddling on the couch while we read him books and watch The Wiggles on TV. Life is pretty good for Logan.

    And it’s pretty good for us too. No, this isn’t the life we had planned, but it’s our life, and now we couldn’t imagine it any other way. Logan’s disability opened us up to a whole new world of people and experiences we never would have known otherwise.

    He’s taught us about unconditional love and finding patience when you think you’ve exhausted it all. Logan does everything in his own time; he sat at fifteen months, crawled at two-and-a-half years, and walked at five. Those milestones, achieved through hard work and countless hours of therapy, were all the sweeter because of the effort.

    When our daughter Lucy was born and effortlessly reached those milestones, we were in awe of what a tiny human could do without being “taught.” It made us appreciate the little things in life even more.

    Reflecting on the past thirteen years evokes a whirlwind of emotions. The journey was messy, ugly, amazing, and joyful all at once. But it has shaped us into who we are today—better people and better parents.

    If I could travel back in time and offer some advice to that sleep-deprived twenty-seven-year-old mom, it would be this.

    1. It’s okay to grieve and be sad. Receiving a diagnosis like ours can feel like a death in many ways. Embrace your emotions; you don’t always have to be strong.

    2. Understand that this child will change your life and make you a better person. Seek out supportive friends who understand your journey.

    3. Let others help you. When someone offers assistance, accept it. You don’t have to carry the burden alone.

    4. Communicate with your partner. You will process your emotions differently, so be open and honest with each other.

    5. This isn’t a race or a competition. Take it one day at a time; you are doing enough, and you are enough.

    6. You will get through this. You are stronger and more resilient than you ever thought possible.

    Receiving a diagnosis of any kind is life changing. If you know someone going through this experience, reach out to them. Ask if they are okay, like really okay.

    And when they turn down your offer to help, step in and do it anyway…let them shower while you watch their child, bring them dinner, mow the grass. Just be there and show your support. These simple gestures will mean the world to them.

  • How I’ve Redefined Success Since ‘Failing’ by Traditional Standards

    How I’ve Redefined Success Since ‘Failing’ by Traditional Standards

    “Once you choose hope, anything is possible.” ~Christopher Reeve

    When I was a child, I wanted to save the world. My mom found me crying in my bedroom one day. She asked what was wrong, and I said, “I haven’t done anything yet!” I couldn’t wait to grow up so I could try to make a difference.

    At fourteen, I joined a youth group that supported adults with disabilities. We hosted dances and ran a buddy program. I helped with projects at state institutions and left saddened by the conditions for the residents. I planned to work at a state institution.

    As a senior in high school, I was voted most likely to succeed. It was unexpected, like so many things in my life. I hoped to find meaningful work that helped others.

    My first year at Ohio State, I fell head over heels in love and married the boy next door. A month after my wedding, newly nineteen, I started my first full-time job as manager of a group home for men with developmental disabilities. I never finished college.

    At twenty-three, I was officially diagnosed with depression after my first baby, but the doctor didn’t tell me. I read the diagnosis in my medical record a few years later. I grew up in the sixties with negative stereotypes of mental illness. I didn’t understand it, and I thought depression meant being weak and ungrateful. I loved being a new mom, and I wanted the doctor to be wrong.

    I was a stay-at-home mom with three young children at the time of my ten-year high school reunion. The event booklet included bios. For mine, I wrote something a bit defensive about the value of being a mom since I didn’t feel successful in any traditional way.

    At thirty, I experienced daily headaches for the first time. I tried natural cures and refused all medication, even over-the-counter ones, while the headaches progressed to a constant mild level. I kept up with three busy kids, taught literacy to residents with multiple disabilities at a state institution, and barreled on. I thought I understood challenges.

    At forty, I went to a pain clinic at Ohio State and received another depression diagnosis. This time it made sense. The diagnosis still made me feel vaguely ashamed, weak. Still, I rationalized it away.

    Which came first, the depression or the headache? Maybe it was the headache’s fault. Anti-depressants were diagnosed for the first time, which managed my depression. Until…

    When I was forty-two, I fell asleep at the wheel with my youngest daughter Beth in the passenger seat. She sustained a spinal cord injury that left her paralyzed from the chest down. I quit my job at the institution to be her round-the-clock caregiver.

    Beth was only fourteen when she was injured. However, she carried me forward, since between the two of us, she was the emotionally stable one. She focused on regaining her independence, despite her quadriplegia. I let her make the decisions about her care and her future. Sometimes we need someone strong to lead the way.

    Every day, every hour, every minute of our new life felt impossibly uncertain. New guilt and anxiety merged with my old issues of chronic pain and depression. Increased doses of my anti-depressants did not prevent me from spiraling down. There was no light at the end of the tunnel. No hope of light.

    I put a tight lid on my feelings, which was a challenge by itself. I didn’t want to give the people I loved more to worry about. I also felt that if I gave in to my emotions, I wouldn’t be able to function. And I desperately needed to help Beth. That’s what mattered the most.

    I started counseling several months after the car accident. At the first session, I thought I would find a little peace, with more ahead. It wasn’t that simple. I felt like a failure, and thought I failed at counseling, too, since I didn’t improve for some time. I should have reached out for help right after Beth’s injury.

    Weekly counseling helped me, along with my husband always being there for me. However, Beth was the one who showed me how to choose hope. I watched her succeed after failing again and again, over and over, on her quest to be independent.

    Beth and I shared unexpected adventures, from our small town in Ohio to Harvard and around the world. She has had the most exciting life of anyone I know. She’s also the happiest person I know because she finds joy in ordinary life, and that’s the best kind of success.

    Since I was voted most likely to succeed in 1976, I learned that success encompasses so much more than I originally thought. Things like being married for forty-five years to my best friend. Raising three great kids. Working meaningful jobs and helping others. Volunteering and mentoring. And learning meditation to better cope with chronic pain.

    Today, my depression is mostly managed with prescriptions, which also feels like a kind of success. I’m no longer ashamed of my depression. It’s part of who I am, and I know for a fact that I’m not weak or ungrateful. There’s light at the end of the tunnel, a bright light.

    Hope is an incredibly powerful thing. And if you never give up? Hope wins.

  • 5 Life Lessons from a Brain Tumor That Could Have Killed Me

    5 Life Lessons from a Brain Tumor That Could Have Killed Me

    “Life is a balance between what we can control and what we cannot. I am learning to live between effort and surrender.” ~Danielle Orner

    I was slumped against a wall at Oxford Circus Station early one Sunday evening when an irritated male voice suddenly barked, “MOVE!”

    Moments beforehand, I had lost my vision.

    Without conscious thought, I muttered, “RUDE!” and staggered off without clearly seeing where I was going.

    It was only months later, on retracing my steps at Oxford Circus, that I realized I’d been blocking his view of some street art.

    I’d allowed a guy to bully me out of the way while in a vulnerable state so that he could take a picture for social media.

    Lesson 1: Not all disabilities are visible.

    We can never fully know what someone else is experiencing. Mental health, chronic pain, and disabilities are not always apparent. So, when we come from a place of not knowing and are patient with others by default, we open up a window of possibility that exists outside of our judgment.

    Minutes prior, I’d stepped off an underground train and onto an upward escalator. A pain hit my right temple like a bullet. It took my breath away, everything went black, and I felt I might faint.

    Desperately, I clung to the railing. And as the top of the escalator approached, my right foot went floppy, and my vision disappeared. I could see light and color, but the world was blurry, lacking definition.

    I used what little vision I had to follow the distinctive white curve of Regent Street down to a spot where I’d arranged to meet a friend

    Panic finally set in when I realized that my friend was walking toward me, and I could recognize his voice but I could not see his face at all.

    We sat down in a restaurant, and a concerned waitress brought a sugary drink.

    My mind went into overdrive: “Had I cycled too much? Was my blood sugar low? Had I eaten/drank enough? Given myself a stroke? Was I just stressed?”

    Twenty minutes later, my vision slowly returned.

    Relieved but freaked out, I asked my friend if he thought I should go to A&E (ER). He said, “Only if you think you need to.” I felt silly. Scared to take up space. Afraid of being a drama queen. I didn’t trust myself or my experience.

    LESSON 2: Don’t seek external validation.

    The opinions of others are helpful, but only you see and experience life from your own unique perspective. Learning to trust and validate our own experience first and foremost is how we step in our power.

    Later I went back home but couldn’t shake it off.

    The next morning, I visited my doctor, who sent me straight to A&E (ER). The hospital admitted me overnight, concerned it was a mini stroke or aneurysm. But the following morning they discharged me, citing dehydration as the cause.

    One week later, I was back in A&E. More dizziness, more foot numbness, more blurred vision. A doctor described it as “classic Migraine Aura.”

    My gut leapt; that didn’t feel right. “I don’t get headaches,” I protested. “I rarely take painkillers. Why so many all of a sudden?”

    They seemed confident it wasn’t serious, but booked an MRI scan, just to be certain.

    Twenty-five minutes of buzzing, clanking, and humming later, I glided out of an MRI scanner.

    I thanked the technician. “All good?” I asked.

    “It’s very clear,” she replied.

    LESSON 3: Listen to your gut.

    If your gut says that something is off, listen to it. A gut feeling is typically a lurch from your stomach rather than chatter from the mind.

    My gut knew it wasn’t migraines; it told me so, and if I hadn’t strongly advocated for myself, then I may not have got that MRI scan.

    A week later, I was back with my local doctor, experiencing vertigo and earache.

    Did I have an ear infection? Was that the issue all along, some sort of horrible virus affecting my sight and balance?

    The GP opened my records up on his computer and his face immediately dropped.

    “Do you mind if I take a moment to read this?”

    “Of course,” I said.

    He composed himself but his face was ashen.

    “Has anyone spoken to you about your MRI result?” he ventured at last.

    I found myself detaching from reality, like I was watching a movie.

    He told me that they’d found a lesion on my brain and there was a possibility of brain cancer. “I’m so sorry,” he offered finally.

    I left and immediately burst into tears.

    Six days I lived with the idea of having brain cancer.

    Had it spread? How would they treat it? Could they treat it?

    More dizziness, more vertigo ensued, and a wise friend firmly told me to go back to the emergency room and refuse to leave until I got answers.

    Reluctantly, I entered A&E (ER) for the third time.

    After a long wait, a neurologist sprang from nowhere, took me to a room, and showed me my MRI scan. I was shocked by the large white circle in the middle of it.

    “How big is that?” I gasped.

    “About the size of a pea,” the doctor said casually. “I believe it’s a colloid cyst, a rare, benign, non-cancerous tumor. It can be removed by operation, using a minimally invasive, endoscopic camera.”

    Relief flowed through me. “It’s not cancer?”

    After reassuring me it was not, the doctor sent me away, telling me to await further news.

    Outside the hospital I hung around updating loved ones by phone. Suddenly a withheld number rang.

    It was the neurologist: “I’ve spoken with neurosurgeons, and they think you should be admitted to the hospital for emergency surgery. If the cyst bursts you have one to two hours max, or that’s it.”

    “Okay,” I stammered. “I’m actually still at the hospital.”

    “Not this hospital,” he said. “A different one.”

    A taxi ride later, it was 5 p.m., and I was in an emergency room for the second time that day and fourth time that month. Despite the chaos around me, I eventually curled up and got a little sleep.

    Suddenly it was 3.30 a.m. and I was still in A&E. Staff rushed in, grabbed my bed, and hurtled me through corridors. Bright lights from London’s skyscrapers flashed past windows, everything surreal and movie-like again

    The next day, surgeons explained that they wouldn’t be sure that they could reach the tumor until they operated, and there were four different options for surgery, ranging from a minimal endoscopic camera through to opening my skull up with major surgery.

    I hoped and prayed for endoscopy but wouldn’t know the outcome until I woke up.

    The operation was planned for 8 a.m. the following morning. I said an emotional goodnight to my sister. Suddenly a lady interrupted us and said, “I hope you don’t mind me saying, but I saw you earlier and you don’t look sick enough to be on this ward.”

    And there it was—the trigger again, the gift, the insight, the lightbulb moment:

    “Despite how bad I feel on the inside, I don’t look ill enough to have a brain tumor.”

    I didn’t look ill enough to the guy at Oxford Circus taking a selfie.

    I didn’t look ill enough to my friend.

    I didn’t look ill enough to the doctors who turned me away initially.

    And now I didn’t look ill enough for this lady’s expectations of who should be in a head trauma ward.

    I breathed into that pain. Into the feeling of not being seen. Of not being heard.  Of not being validated. Of feeling like a fraud, an imposter. Of not deserving to take up space. Of not trusting my experience.

    And when I found my center, I quietly replied, “Actually, I’m having surgery to remove a brain tumor tomorrow morning.”

    Her face fell, then she wished me luck and moved on.

    LESSON 4: Our triggers are our gifts.

    When we are triggered, it shows us what needs to heal.

    It was me who felt unworthy of taking up space. It was me who felt like a fraud. She was simply my mirror. It’s up to me to heal those aspects within myself and to believe that I’m worthy of taking up space—and to then take it.

    The next morning, my operation got pushed back. It was a major trauma hospital, and bigger emergencies took precedent. I engaged in mindfulness to stay centered.

    I did an hour of breathwork to calm my nervous system. I listened to uplifting music to raise my vibration. I watched emotionally safe movies to collect warm, fuzzy vibes. I drew on my iPad and alchemized my head tumor into a cute pea cartoon character—benign, polite, and cute, not threatening at all.

    A porter arrived at 5.30 p.m. and whisked me away for surgery. After weeks of surrendering to the unknown, it was now time for the ultimate surrender of any illusion of control. I took a deep breath as anesthetic filled my veins.

    LESSON 5: Surrender.

    We can’t always control what happens to us or the outcome. We can only control what happens inside of us and how we choose to show up. We take our power back when we lean into the unknown and surrender. When we resist our current reality, we suffer more.

    I woke up two hours later and got sick.

    My brain was rebalancing after months of increased head pressure. Clutching a blue plastic bag, I looked up to see one of London’s best neurosurgeons waving cheerfully at me. “Your operation is over. We used an endoscope. Minimal invasion. We think we got it all, and it’s not likely to come back.”

    Relief, nausea, and gratitude flowed in abundance.

    I dozed a little while morphine played tricks on my mind. Delicious little dreams filled my head, and I saw the world as one big, animated garden with flowers as cartoon characters.

    I giggled at the thought of plants acting as humans do and imagined an aggressive rose bush declaring war on all of the other plants and throwing bombs. It seemed ridiculous. Humans should be more like flowers, I thought—less ego, just growing, flourishing, blooming.

    I enjoyed this magical trip a little longer, a welcome respite from the hell of the last month, and eventually they wheeled me back to the ward.

    I arrived in time to see the sun setting across London from the twelfth floor.

    It was magnificent. Its beauty, color, and intensity moved my weary body to tears.

    A nurse came to check that I was okay, and I assured her that I was crying happy tears.

    I silently watched the sun as it made its final slip over the horizon, safe in the knowledge that I’d survived another day.

  • How I Turned My Disability into Desirability with a Simple Perspective Change

    How I Turned My Disability into Desirability with a Simple Perspective Change

    “Stop thinking in terms of limitations and start thinking in terms of possibilities.” ~Terry Josephson 

    I was affected by the deadly poliovirus when I was six months old. Most people infected with it die. Even today, there is no cure for it. I miraculously survived, but lost my ability to walk.

    During the first twenty years of my life, I evolved through crawling on the floor, lifting my leg with my hands, wearing prosthetics, using canes, and finally learning to walk, painfully, with crutches. As I grew up, I experienced post-polio syndrome, which weakened the other parts of my body.

    Some forty-five years ago, there were no educational or medical facilities in the remote area of India where I lived. That slimmed my chances of getting any education. When I reached the age to go to school, the only way possible was to wear prosthetic braces weighing forty-five pounds on my leg, which was more than my weight. It was incredibly painful to walk while wearing them. In those braces, I could barely take one baby step at a time.

    Experiencing Victim Mode

    The result was me being bullied, left behind, and teased by my classmates all the time. There were times when I had to drag my iron-casted leg back home alone for over a mile using the strength of my stomach muscles. It used to take me two hours, which felt like a lifetime. That cycle repeated for many years, and my emotional pain grew more and more.

    Every time, I asked, “Why me?” The more I asked, the more unpleasant the answers got in my mind.

    Stepping into Fighter Mode

    That misery got me into a fighter mode. I remember that many of the motivational books I read stressed one thing: “Break the walls.” So I secretly subjected myself to the harshest physical exercises, torturing myself, hoping someday I would get better at my disability. But the more I tried, the more my emotional and physical problems escalated—to the point of a breakdown. Charged with much willpower, I did not realize that perhaps I was fighting against the wrong wall. I failed.

    As I see it now, the actual wall that was limiting me was less my physical disability and more my self-limiting beliefs. I had made up unreal, perceived walls in my mind, thinking that I wouldn’t be accepted unless I walked like ordinary people.

    These made-up walls were the ones that were actually stopping me. I was doubly disabled—externally and internally.

    Spotting the Windows

    Every time I was left behind, I made a pact with myself: If I couldn’t walk with my legs, I would walk faster with something else. But the big question was: with what? But then, a simple perspective shift I call “windows through the walls” changed my life and put me on the path of personal transformation to achieve excellence.

    I gradually realized that my disability gave me some gifts I did not recognize earlier. I had no social interruptions, no spoiler friends, and not much mobility. Because of those three things, I had plenty of distraction-free time at my disposal, which was a gifted environment. What could I do with this unique leverage?

    Reading books was the best thing I could do while being contained in a chair. I remember the first book I read, by Dale Carnegie, was much ahead of my age. Soon I mastered poetry, physics, palmistry, psychology, and philosophy while reading any book I could afford to buy or borrow.

    By rigorous reading and learning through science books, I became an engineer at the age of twenty-one, and a year later, I became a technology scientist. It stunned the people who never believed I could do so. The hunger to learn faster led me to earn two doctorates, more than 100 international credentials, and some of the world’s highest certifications.

    “I couldn’t walk with legs—now I teach people how to walk faster in what they do.”

    My lack of speed made me obsessed with gaining it in another area. That became the unique expertise that took me places. I became a performance scientist, helping people speed up their learning and performance skills.

    Not only this, I leveraged my ability to learn and started sharing my learnings with others. My social isolation did not persist, and soon I had one of the largest friendship circles around.

    With my circumstances, I could engage in daydreams that developed my vivid imagination. Soon, a writer inside me woke up. I wrote dramas, stories, poetry, articles, and many things at a very young age. While I could not afford to buy one book then, I have authored twenty books now.

    While glued to that chair, I had similar leverage as other kids—that is, my hands. I developed my skills in painting, drawing, and sketching and received an international award for my art from back then.

    As I reflect back on it, my disability hardly ever got in my way while achieving these things. Rather, it helped me go faster. When I saw my crisis, my disability, my limitations, I did not see them as walls that I should break. Instead, I chose to spot windows among them—windows of opportunities, leverages, and advantages. I’ve leveraged everything my limitations ever offered me.

    Two Important Lessons

    I learned two important lessons in my journey.

    First, not all the walls that seem to be limiting us are real. We need to find the wall that indeed is limiting us and then break it.

    Second, we don’t always need to break every wall because some have windows. No matter the circumstances, we all should focus on spotting the windows.

    Once we change our perspective, we will be surprised at the number of advantages we find in our adversities, desirability in our disabilities, and leverages in our limitations.

    Are We Enough?

    When we experience a loss, we may feel less than others. That’s okay. Sometimes, the crutch I use as an aid for walking reminds me of what I lack. But that’s okay because I wouldn’t be where I am today if it was not for my disability. I think my loss, my disability, defines who I was yesterday, who I am today, and who I am going to be tomorrow.

    However, some of us have been groomed to chant motivational mantras like “I am enough.” It is like convincing our minds that the glass is full, so our minds might stop looking for possibilities.

    But when we realize our glass is half-empty, we become hungry to find windows of leverages in our misfortunes or limitations to fill it up somehow. That’s when we create new possibilities for ourselves.

    Leverage Your Losses

    Think about the losses that you have experienced due to your adversities, failures, or misfortunes. How could you leverage these losses to go from feeling less than others to being a lesson for others?

  • 5 Ways to Be Productive with Chronic Illness: How I Built a Business from Bed

    5 Ways to Be Productive with Chronic Illness: How I Built a Business from Bed

    “The master leads by weakening their ambition and toughening their resolve.” ~Tao Te Ching

    How much of productivity advice is ableist? Sure, there are lots of good ideas and concepts in there, but most of it is healthy-body-focused.

    Advice like:

    “Be sure to exercise in the morning.”

    “Get up early before anyone else.”

    “Keep a consistent morning routine of meditation, journaling.”

    “Set aside fixed times in the day to do deep work.”

    “Get dressed and do your hair even if you work from home.”

    “Set goals and stick to them.”

    “Work harder than anyone else around you.”

    I have built a business entirely from bed, entirely from my pajamas, without ever getting up early, without knowing what time my body is willing to get up and function each day, with no schedule at all due to daily changing physical and schedule needs.

    I set goals, but they only get done when they can; I cannot force my body to make anything happen. I might have a few hours a day average of usable time, some days it’s barely usable at all.

    I’m 95-99% bedbound and have been for the last eight years since I started my business. Two of those years I was homeless living in tents, and I spent three more moving from B&B to B&B or hotel to hotel.

    My illness threatens to end everything on a biweekly basis, sending me into a few days of complete inability to function, followed by a trauma shutdown state for a day or two more.

    This is how I have been able to build a successful business in the midst of that, while learning from productivity teachers and adjusting the advice to these circumstances of chronic illness.

    1. Let go of the stress.

    The stress of working is one of the main things that prevents people with serious chronic illness from holding a job or running a business. Having a job that is super flexible has been key to my survival and success. Being able to take on tasks on my own time when I am able, without a deadline, is definitely central.

    But still, it’s been vitally important that I’ve worked on letting go of stress around my work.

    I was very much influenced by a video by Eckhart Tolle on how our thoughts make the situation what it is. It’s the thoughts and engrained associations with those tasks that create stress in the body making some of those tasks more difficult.

    For example, typing a letter to a friend versus typing an easy email for work is technically the same job. Watching a movie that takes concentration versus watching an educational video for work is technically the same job. By remembering this, work-related tasks feel less daunting.

    This is the most difficult item on the list for me, but I’ve made progress. I am still working on it!

    2. Let go of perfectionism.

    Banish this to outer space immediately! This was the best thing I ever did. I don’t have to keep going on a task until it’s done or until it’s perfect. I can keep many moving parts going without needing to do them all perfectly.

    I do focus on excellence in the research and writing for my job, but anything that doesn’t need to be done perfectly, I don’t. If it’s good enough then it’s done.

    You can’t be super productive in very little time and get caught up on anything that isn’t needed.

    3. On that note, let go of any and every task that isn’t necessary.

    This is the only way I have found time to work and is another big thing that can hold someone back.

    Emails that don’t 100% need to be sent or replied to? I don’t do it.

    PMs and messages? I don’t reply to almost all of them.

    Social events (online or even emails) that I can’t make it to, I don’t.

    Keeping up with email newsletters? I don’t.

    Keeping up with the news, nope, can’t do that either.

    Any task that comes my way regarding an account issue, to an order I need to put in, to something I need to clear up or fix with a company or provider, I ask myself if not doing it will not have any consequence. If not, it’s not getting done.

    I have faced the most misunderstanding on the point of not responding to messages. But it’s a matter of survival. I cannot do all of those things and also make enough money to eat and pay my enormous illness-related bills.

    4. Make time in a way that makes sense for you.

    I don’t have very much control over my schedule, but I do have some. I don’t know if my body will function on a given day; I often urgently need to arrange getting medical appointments, medication, or other items needed for survival, and these things can throw off so many of my days.

    But I still arrange my weeks in a way that allows for the best chance of streamlining my schedule and creating time for deep work.

    I ask my caregivers to either come every second day, or at worst, take one day off per week. Some of those off days will coordinate with a “good day” for my body and will result in some time to dig into the larger chunks of work.

    5. Organize tasks by ability.

    I can’t know what my abilities will be like on any given day, so I always have a running tally of at least ten tasks that need to be done that vary in their length, cognitive ability required, concentration ability needed, and stress or annoyance level.

    I usually have about three that are at the top of the list ready to go for good days. My best moments are reserved for deep research and writing, with the smallest tasks reserved for the sickest days, the days with the least amount of concentration ability, or days where I know I will be interrupted a lot.

    I always do something, though, even if it’s just a ten-minute task that day. My entire business success is based on this “just do what I can approach.” But I never choose not to do anything just because it’s a day when I don’t feel great or have good cognitive ability.

    I take some time to think through the tasks at night in the bath and in the morning before I get up from bed.

    …

    Those are my secrets to building a business from bed, and most of these strategies are a far cry from the conventional advice on how you need to schedule your day to be successful.

    A “productive” schedule is one where you can accomplish what you want to in any way or at any speed that you need to.

  • A Video from an Inspiring Woman Who May Not Seem Normal

    A Video from an Inspiring Woman Who May Not Seem Normal

    She has a disability, but she feels grateful for her abilities, and she has an important message to share about what’s “normal” and judging by appearances.