Tag: dementia

  • How I Learned the Power of Letting Go After My Father Developed Dementia

    How I Learned the Power of Letting Go After My Father Developed Dementia

    “There is beauty in everything, even in silence and darkness.” ~Helen Keller

    When I was eleven years old, I would force myself to stay awake until the wee hours of the morning.

    I was severely anorexic at a time when eating disorders were considered an “inconvenience” you brought on yourself. Anorexia was dismissed as a rich, white girl’s disease (although we were certainly not rich)—a disease that was easily curable with a prescription for a chocolate cake.

    Although my emaciated body was a dead giveaway of my condition, it was school that noticed the change in me first. My once stellar grades began to slip, and I was falling behind in the advanced academic and art program I was a part of.

    “Just eat already,” my teachers would tell me, and when I tossed my lunch into the garbage, I’d be sent to the nurse’s office to watch The Best Little Girl in the World. Again.

    At home, grape-flavored bubble gum and bouillon cubes were my foods of choice. I did toe-touches, crunches, and jogged at least four times a day, passed out some mornings, and hid my body under layers of flannel shirts on the hottest August days. But even as my disease raged, home was still my refuge, a place where my eating disorder could take its hair down and run wild.

    Thankfully, both my parents worked full-time and often through dinner, so mealtimes weren’t much of a struggle. And when we did eat together, I became as much of a master at hiding my food as I was at hiding my body.

    I was also smart. Or maybe conniving is a better word. A weekly trip to Friendly’s for ice cream (the irony of that name!) fooled my overworked parents into believing that I was fine.

    Puberty had simply shaved off any “baby fat” I had, they reasoned. What they didn’t know was that puberty never had a chance with me. No sooner did my period appear, I starved it away.

    But even with the ice cream trips and their growing awareness, I still felt fairly safe at home.

    Until that one moment that changed everything.

    On a sunny, unremarkable fall day (Isn’t that what Joan Didion tells us? We are most surprised by those tragedies and traumas that happen on “normal” and “beautiful” days…?), my father surprised me by picking me up early from school.

    Hurrying to the office for dismissal, there was a tiny, naive part of my eleven-year-old self that thought maybe he was surprising me with a trip to Disney World.

    That’s what happened to my friend, Mary, the previous year. When she returned from her impromptu trip, she was sporting tanned skin and a perpetual grin. She then spent most of our fifth-grade year with mouse ears glued to the top of her head.

    But there was no Magic Kingdom for me. Instead, without so much as an inkling as to where we were going, my father hustled me into his car, and we drove away. Sitting next to my father, a man who held all the power over me, my stomach ached as I wondered what was about to happen.

    My weak heart pounded in my chest, and as we drove, I prayed it wouldn’t give out. Catching a glimpse of my ashen skin and white, cracked lips in the rearview, I knew that I was nothing more than a stray dog in a shelter, ripped from my cage by a complete stranger, wondering if I was about to be put down, thrown into a fight, or worse.

    Finally, we arrived at our destination, a medical center in a strip mall. As soon as we walked through the front door, I gagged on the thick scent of medicine and grape lollipops that hung in the air. Without a second to catch my breath, I was whisked into a doctor’s office and onto a scale.

    Looking down her nose at me, the doctor snapped, “You’re too skinny. You need to gain weight.” While I stood there on the scale, she turned to my father and diagnosed anorexia nervosa.

    Then she looked at me. “If you don’t eat,” she warned in a sharp tone, “we’ll have you put in a place for ‘girls like you’.” She then informed me that once I was locked in that wretched prison of force-feedings and shackles (as I imagined it), I wouldn’t see my family again until I was “fixed.”

    When we returned to the car, my father spoke the first words he had said to me all day: “So? Will you gain weight?”

    “Yes,” I answered, too frightened to fight. Too scared to advocate for myself. Too terrified to tell him that this wasn’t a choice. I wasn’t choosing to starve myself; I was sick.

    But even if I had spoken, he wouldn’t have understood. No one did.

    From that moment on, I knew that I was completely alone. That’s when I began to stay up way past midnight, quietly jogging in place. I’d stop only to press an ear to the door, straining to hear what my parents were saying. Would they send me away? To that place?

    “I’ll never let it happen,” I assured myself. I would die before I’d go to a place where I was literally stripped of myself.

    For the next few years, the games continued, and although there were always doctors and threats, I kept myself just alive enough to stay out of that particular treatment center.

    ****

    Flash-forward almost forty years, and today, my father is an old man with dementia.

    As the Universe sometimes works in strange ways, I am now one of his primary caretakers. Although our relationship was strained for many years and I missed out on the experience of having a strong male figure in my life that I could trust, he did walk me down the aisle, and I am here for him now that he needs help.

    My father doesn’t remember that day that will forever be burned into my brain. He doesn’t remember the hell I went through the years that followed—the fear, the insecurities, the isolation, and the self-inflicted bruises I sported because I hated myself so very much. More than anything, he was, and is, clueless of the real battle scars—the ones that lay deep inside.

    He doesn’t know that that one “unremarkable fall day” when he pulled me from school started a negative spiral in my life, a time when I began aligning with damaging beliefs and inflicting self-harm.

    All he knows now is what his dementia allows him to—if the sun is out, if the squirrels ate the peanuts he tossed to them, and whether or not I am there to help him; to deliver his groceries, to take him out on drives, and to care for him.

    Yes, this could easily be the ultimate story of revenge, but years of teaching and practicing yoga have brought me down a different path.

    The path I have chosen is the path of letting go.

    Truthfully, my father’s dementia has left me no choice but to let go, at least of some parts of my life. I’ve needed to let go of expectations, of attachments to the outcome, and even, sometimes, like in those moments when he calls me “Sally,” my own name and identity.

    But in letting go, I have found that his disease has brought some gifts as well. I’ve learned to slow down and appreciate the daisy he wants to admire, the flock of chickadees darting in and out of a bush he’s watching, and the feel of the cool fall air on my face as I help him to and from a doctor’s appointment.

    Letting go has allowed me to experience all those things that I was previously too busy to appreciate. As Helen Keller said, “There is beauty in everything, even in silence and darkness.”

    But letting go because of his dementia wasn’t enough.

    I had to let go for me, too.

    To let go of the toxic weight from the past, I released that moment when everything changed, all those years ago.

    How? By simply deciding to put the weight down—and not just with regard to that event, but in all aspects of my life.

    Was it easy? No. But it was doable.

    In letting go, I didn’t worry about forgiving (although it is an important step for healing), or seeing someone else’s perspective. I simply unhanded my tight grip on all the “wrongs” I had endured and still carried with me, as well as all those things for which I blamed myself.

    Every one of us will live through events, some that we consider positive, and others, not. The only control we have is in how we deal with the circumstances we’ve been given.

    We can choose not to shoulder the burden, and to unpack those weights we’ve been carrying. We can close our eyes, breathe deeply, and tell ourselves, “I will put that weight down.”

    That’s where our true power lies.

    Have I forgotten my past? Of course not. But I have let it go, and in letting go, I have reclaimed an important relationship with my father, and more importantly, with myself.

    By letting go, I have released my suffocating grip on life, and reclaimed my personal power.

  • What’s Really Important: 3 Things I Realized When I Lost My Grandmother

    What’s Really Important: 3 Things I Realized When I Lost My Grandmother

    “We forget what we want to remember and remember what we want to forget.” ~The Road

    “Okay grandma, we’re going to run away!” I wheeled my grandma Jeanne in her wheelchair into the sunlight, through the courtyard, after we exited her nursing home. She knew though that she couldn’t leave, but she went along with the game. She knew she was stuck there. But we had fun with it, nonetheless.

    I really did want to run away with her. I’d had a dream the night before that she told me, “I’m at the end of my life. You will be judged for how you take care of me.” That shocked me. I felt fear and worry about the potential of losing her and not doing a good enough job at helping her through her last days. She’d had a stroke and then was diagnosed with dementia. I wanted to care for her and make her proud of me.

    “Do you work here?” My grandma looked at me, and suddenly I felt like I was failing her. It wasn’t my fault she didn’t recognize me. But I still felt like it was, like I wasn’t doing enough, especially due to that dream.

    “No, it’s me. Your granddaughter, Sarah.” I pleaded in my heart that she would recognize me. She looked confused then said, “Oh.” I knew she felt ashamed she didn’t know it was me.

    It was bittersweet when I left her. We had so much silly fun together. I knew I brightened her day. But it was darkened by her dementia and not knowing who I was at the end. It made me feel sad and defeated. Life’s unfairness hit me. Why did it have to be so hard for so many?

    Losing your memories seems like the worst thing to happen, and that was at times her reality. She could only escape it with me so much.

    If I could go back in time, I would visit her every day. I had already lost my other grandparents. She was the one who was there through to adulthood. I missed her so much after she passed.

    It made me think of what would happen to me as I got older. Would I look back and be proud of myself? What would my future self say to me now? Who would I become?

    Would I be an old woman wheeled around in a wheelchair by her granddaughter in a silly way? Was that success? That moment of love we shared was everything.

    And like that, it was also gone. Little moments like this can be so fleeting. Happiness can be so hard to hold onto. But her spirit stayed with me.

    That was also a time when I truly let go. I’d had a guard against love all my life due to the trauma of abusive boyfriends and more. I didn’t know how to truly feel it. But my grandma’s love sent me wisdom.

    Her love made me realize that I was special, worthy, and enough. I didn’t have to try to become someone. I was already someone. I was loved by her, and it was the type of love that changes you.

    I may have lost her to dementia and then death, but she taught me my value when I couldn’t see it myself. Even when she didn’t recognize me in the end, I knew that she was guiding me in this realization.

    That day with my grandmother made me think about life and what was really important. Here’s what I found.

    Life is a Gift

    And one day, you have to give it back. You’ve heard this a thousand times, but it’s short too. It goes by fast. This makes you think you have to hold on tighter, fight harder, and become better. What you should be doing is the opposite of that: letting go.

    Let go of the reasons you are afraid to be real in a relationship, go somewhere new, or be happy with yourself.

    Embrace the fleetingness of it all so you can make the most of your life while you have the chance. It’s okay to feel like things are not in your control. None of us can truly control anything or the outcome of a life.

    I couldn’t control my grandma losing her memories, but I made each moment with her count. That’s all I could do.

    Instead of trying harder, try softer. Release and surrender to the fact that you can’t make everything last. But some things do. The most important things do.

    Love is what stays when everything else has left us. Love is what we know even when we lose our memories of the past. The feeling remains even when the knowledge of it is lost. At least, that’s what happened with my grandma. I knew she felt my love even if she didn’t remember me. And that’s why I was able to see the impact of our time together anyway.

    You Are Enough

    When we look back at our lives, we will not say, “I should have had more achievements, greater wealth, more popularity, higher status, or a perfect body.”

    So why do we focus on these things?

    Society makes us feel like we have to be a celebrity or a massive success to be important. It makes us feel like we have to have a huge Instagram following to be an influencer. It makes us feel like we have to perform at all times on social media, only showing the highlight reel of our best moments. It makes us feel like we have to be thinner, richer, younger, more successful…

    Where is authenticity in all of this? Where are the poets, the artists, the ones that heal a hurting world?

    That’s what it really means to be important: to embrace our authentic selves so we can make a genuine difference in our sphere of influence, however big it may be. We don’t need to reach millions. We just need to reach into the hearts of the people we encounter knowing that truly is enough.

    Don’t feel like that’s enough—or that you’re enough?

    Do it anyway.

    Love anyway.

    Risk being yourself anyway.

    Forgive anyway.

    Show kindness (despite having experienced cruelty) anyway.

    Choose happiness anyway.

    Surrender anyway.

    That’s what saves the world. It’s not about being known and admired by everyone. It’s about being authentic in a world that makes us think we are not enough. Because authenticity connects us. And genuine connection is what heals.

    Very Little Matters in the Grand Scheme of Things (and That’s Okay)

    The missed opportunities, the exes you had to leave behind, that perfect situation you thought you had to maintain… none of it matters. I’m not saying these things didn’t matter to you, or that they shouldn’t have mattered. Just that in the grand scheme of things, our circumstances aren’t as important as our character.

    What really matters is who you are in those moments in between waiting for the next best thing to happen to you. It’s how you treat the people in your own little world when you’re wishing your world would change.

    What really matters is your attitude when you feel lost and confused. It’s letting yourself find reasons to smile even though you’re not sure where you’re going or what you’re even doing. It’s being happy with what you have, even if you aren’t where you want to be. And it’s loving life even when you don’t know what to live for.

    Cherish each second you are alive. Muster the strength to comfort and to be comforted. Inspire and lead whoever you can, help others through shared problems, and remember to talk about that which is hardest to talk about.

    Forgive who you can, most of all yourself, and remember that it is the small moments that make up our lives. It’s the little joys we share with the people who take up the biggest place in our hearts. I may not remember everything at the end of my life, but I know I’ll remember I loved, and that I was loved in return.

  • How Forgiving Yourself and Others Changes Your Brain

    How Forgiving Yourself and Others Changes Your Brain

    “Be quick to forgive, because we’re all walking wounded.” ~Anonymous

    People often behave in ways that we find irritating, annoying, or worse. This can happen especially with people close to us.

    They can speak with little consideration for the impact of their words. They can criticize us and pounce on our mistakes. Sometimes they do unfair things that seriously disadvantage or damage us. Or they let us down when we’re counting on them.

    All these behaviors can lead to us feeling wounded. The scars can persist for years or even decades. The closer the offenders are to us, the greater the impact tends to be.

    Most of us would like others to understand us, to act reliably, and to be approachable when things go wrong. We’d like them to be kind in dealing with our mistakes or offences. We’d like them to understand that we aren’t set in stone, that we aren’t just the sum total of our mistakes.

    We deserve a chance to recover and show our better side. We’d like them to be more understanding and put a more favorable interpretation on what we did or failed to do.

    However, it can be different when others behave badly. Often, we spend a lot of time and energy going over the way we were wronged, mistreated, disappointed, disrespected, or disregarded.

    Dwelling on the perceived wrong kindles the fire of a grudge. The more we dwell on it, the bigger this fire grows.

    Can this fire burn us?

    When I was in high school, some of the coolest kids formed a band. Everyone wanted to be in that band. I played the piano, so I too wanted to be in it.

    One of my closest friends also played the piano, but not as well. It became a bit of a tussle between us. I was chosen, to my delight.

    When we started playing gigs, a piano was not always available. So I took to the melodica, a little instrument into which you blow. It has a keyboard.

    We started playing gigs, with quite a good response from audiences. Everything was going well, until we were invited to play a gig in a venue right near my home.

    The melodica was at the band leader’s house, because we rehearsed there. I asked for it to be brought to the gig.

    On the evening of the gig, my bandmates turned up. Unfortunately, the melodica could not be found. Apparently, it had been brought to the venue by the band leader but had disappeared.

    This was a bitter blow. I had so looked forward to strutting my stuff before a home crowd. I rushed around to various people who might have a melodica, but could not find one.

    The gig happened without me. I was downcast.

    Eventually, the real story came out.

    The melodica had been brought to the venue. The close friend I mentioned, who also played the piano, had simply taken it away and hidden it.

    I was outraged. I felt betrayed, violated, and angry. I felt ready to run my friend over with a large truck.

    We didn’t speak for a couple of years. Then I got an apology of sorts. Somehow, things were never the same between us.

    I went off to medical school and our paths have never crossed since.

    What happens to your brain when you cling to a grudge?

    The parts of your brain that specialize in criticism grow more active. They feed on your thoughts about the grudge. The neurons involved lay down more connections, strengthening this response.

    The next time someone behaves in a way that you disapprove of, your brain more readily jumps to criticism and judgment.

    All that is understandable, you’re not alone in practicing criticism. But there’s a price to pay for this practice.

    The same parts of your brain that criticize others also criticize you. You tend to become more unforgiving about your own mistakes. Self-acceptance recedes. It becomes harder for you to like yourself.

    Further, this can lead to a cycle of mutual criticism between you and people who matter to you. It tends to weaken the supportive relationships we all need.

    A recent study among 5,475 men and 4,580 women aged over 50 showed that a single point increase in negative social support score resulted in a 31% rise in the risk of eventual dementia. Negative social support is where you experience a lot of critical, unreliable and annoying behaviors from others, especially people close to you.

    What can you do to start breaking this downward spiral of mutual criticism and self-criticism?

    First, ask what stresses or problems may have led to the undesirable behavior. Try to find explanations that weaken the impact of the “bad” behavior on your mind. This is as true for self-criticism as for criticizing others.

    Perhaps there were circumstances that led to you acting in regrettable ways. If you regret it, don’t wallow in the regret. Find explanations to understand why you did what you did.

    Give yourself the gift of forgiveness, strengthen your resolve to do what is good and important going forward, then move on. This same gift of forgiveness may be given to others, recognizing that all human beings are vulnerable to errors or even terrible behavior.

    Forgiveness is not the same as reconciliation with the offender. Reconciliation is the re-establishment of mutual trust. That requires a further step as part of negotiation.

    But forgiveness can proceed regardless of reconciliation and mutual trust.

    The more you practice understanding and forgiveness, starting with yourself, the more you strengthen the self-reassuring parts of your brain. These are the same parts that show empathy and compassion to others. They make you more accepting of yourself, with all your flaws and stumbles.

    We all have flaws and stumbles. That’s okay. It’s part of being human.

    If I could go back to my youth and replay my friend’s apology, I hope I would respond with more understanding. After all, if our positions had been reversed and I’d been blinded by envy, who knows what I might have done.

    For a better quality of life right now, with more self-acceptance, and for a lower risk of cognitive decline, try loosening your grip on grudges. And be gentle with yourself when you slip up in this effort. The steering wheel of your life often requires a little time, patience and practice before you can turn it reliably.

    I’m still practicing. That’s okay.

    Illustration by Kellie Warren. Find her on Instagram @kellistrator.