Tag: autism

  • Why Life Felt Hard for Me for Years (and 7 Lessons That Have Helped)

    Why Life Felt Hard for Me for Years (and 7 Lessons That Have Helped)

    “You’re so hard on yourself. But remember, everybody has a chapter they don’t read out loud. Take a moment. Sit back. Marvel at your life; at the mistakes that gave you wisdom, at the suffering that gave you strength. Despite everything, you still move forward, be proud of this. Continue to endure. Continue to persevere. And remember, no matter how dark it gets, the sun will rise again.” ~Unknown

    All my life I knew I was different. If I didn’t look so much like my mom, I would have believed the jokes my brother told me about how I was adopted. I just couldn’t relate to everyone else in my family—or the rest of my world.

    I was a little black girl that often got called an oreo because, well, you can imagine.

    I didn’t talk a lot, spent a lot of time writing, and a lot of time alone. Going to parties gave me headaches, and being forced to mingle made me want to hide.

    Although I didn’t know it had a name for it, I was introverted even as a child.

    As I grew up, those things didn’t change much. And I found life to be hard. Exhausting even.
    But no one ever said that life was easy, right? I kept that thought at the forefront of my mind and pushed on like the rest of the world.

    I did what everyone did.

    I got pregnant and found not just pregnancy to be a challenge but parenting as well. Moved out of my parents’ house and was met with more challenges. Got married and felt as if I was literally losing my mind.

    The responsibility of it all had become so much. Too much.

    Everyone else made it look so easy. Why was this proving to be so hard for me? My mind wouldn’t let me rest.

    I was never suicidal, but I was waking up wishing I hadn’t. I needed help. And not just prayerful thoughts or a comforting word.

    I needed professional help. And I needed it fast.

    So I sought out a doctor and made an appointment. Turns out I was suffering from depression and anxiety.

    Well, that explained a lot. Things made a lot more sense now.

    I adjusted my lifestyle to support my mental health by doing things like journaling, eating healthier, and exercising. I even took the medication that I was prescribed.

    But something still wasn’t quite adding up. As hard as it was, I brushed it off as anxiety and carried on with my life.

    It wasn’t until my baby, who was now twelve years old, confided his own life struggles to me that I had to revisit the whole mental health issue.

    After finding a psychologist for him, she suggested we do some testing to see what was really going on.

    Those tests revealed a few different things, including depression and anxiety. And also, autism spectrum disorder.

    I hurt for my baby. And honestly, I didn’t know how to relate to him anymore with this whole autism thing. It forced me to do a deep dive into research because I needed to understand how I could best help him.

    That’s how I found my missing piece.

    The way I identified with the characteristics of autism was shocking. The relatability was unreal. I scored so high on an online assessment that I knew I had to share this with a doctor.

    The results were in, and it was clear that I had autism spectrum disorder as well.

    For thirty-seven years and nine months of my life, I thought I was just like everyone else. I thought that life was just supposed to be this hard.

    Turns out there was a reason I couldn’t relate to how everyone else was getting on.

    It felt so good, knowing that I had a valid reason for thinking it was harder on me than those around me.

    I was so relieved to discover that I wasn’t a bad mother because of the times I would have preferred to be working on my ‘special interests,’ like jewelry-making and crocheting, rather than parenting. It was eye-opening to find out that my executive functioning skills were behind what formerly seemed like laziness and a lack of motivation. I was thrilled to know that I wasn’t the only one with conversational issues.

    What I learned brought my son and I so much closer together. And we’re learning how to get through life with this newfound knowledge. It has also taught me some valuable lessons about life.

    1. Don’t worry about what everyone else is doing.

    We are all born differently, and everyone has their own purpose in life. You can’t spend your life trying to copy someone else because their life seems so great.

    I never wanted to be like anyone else. But because the world has a way of making you feel like you’re not enough as you are, I tried to be like everybody else.

    I went to college even though I had no interest in it. I worked at jobs that ate away at my soul. And I got married before I understood what marriage was even about.

    I did these things because my dreams were dismissed by people who had professional careers, high social standings, and a successful family life.

    But what I didn’t know then is that we weren’t made the same. Just because it worked for them, doesn’t mean it was supposed to work for me.

    They have talents and skills that make it easier for them to appear effortlessly awesome at what they do.

    But they also have struggles behind the scenes that I didn’t see.

    Following traditions and trends is not mandatory. Do what’s best and easiest for you and you will create a life worth living.

    2. Pay attention to your feelings.

    What you feel is valid. If there is something going on with you, don’t dismiss it right away. Lean into those feelings and ask yourself why you’re feeling that way so that you can figure out what you need to do to feel better.

    Just because the people around you don’t understand how you feel, it doesn’t mean what you feel is wrong.

    3. Be gentle with yourself.

    It’s so easy to be rude and disrespectful to ourselves, often without even realizing it.

    I used to beat myself up because I couldn’t keep a job. I would get depressed because I didn’t know how to be social with other people. And I always put myself down because I felt like such a flake.

    But I know now we are each the one person we have to be around all day, every day. We can’t just cut ourselves out of our lives.

    So treat yourself how you would treat a good friend. Lift yourself up even when you mess up. Be honest but gentle.

    Pay yourself compliments. Treat yourself. And don’t let anyone else treat you poorly.

    4. Know that you aren’t the only one going through difficult times.

    Life does come with some hardships. Even though you have your own things that you’re going through, there is someone out there rocking a big ole smile every day that is going through something too.

    Had my son not been so open with his feelings, it would have been much more of a struggle for him to just live.

    Pay attention to your loved ones. Notice changes that are going on. And ask others how they’re doing.

    5. Get help when you need it.

    Pride can keep you from getting the help you need. So can denial and believing you’re unworthy. It takes strength to admit that you need support for your mental health, but your mind is just as important as your body.

    When you know what’s going on, you can better address the situation.

    Discovering that I have depression, anxiety, and autism has led me to learn about the differences in my brain. Because of that, I’ve been able to find ways to get things done that work for me so that life isn’t quite as hard as it’s been.

    6. Know who you are.

    Take time to get to know yourself. The more you know about who you are, the better prepared you’ll be for whatever comes your way.

    Knowing what you like and want out of life will keep you from going after things that will not make you happy. Knowing what you don’t stand for will keep people from running over you and make it easier to see when you need to remove yourself from certain situations.

    It will also give you the confidence to go after your dreams and believe in yourself.

    7. Know your limitations.

    Some things are hard to do just because they’re uncomfortable. Others are hard to do because you have mental or physical limits that, when reached, can lead to serious ramifications.

    One of the hardest things for me to do is socialize. Even the simplest conversations can stump me. And sometimes, I physically and mentally freeze and simply can’t do it.

    An example of this is when I take my son to therapy every week. He goes in with the therapists without me and comes out with the last therapist he’s seen, and it’s her job to inform me of how the sessions went.

    It’s the most stressful two minutes of my week. The other moms seem to have it all figured out. They go back and forth with lots of lively conversation, laughter, and other body language that they throw into the mix.

    But when it comes to me, my eye contact is sporadic, I’m full of one-word answers, and I typically have no follow-up questions. I’m sure I do more head-nodding than speaking.

    I used to walk away feeling so lame and defeated. The truth is, I still feel defeated at times because I’d like to be able to socialize successfully, but I’ve accepted that it’s just not for me. I’m okay with that. I definitely don’t feel lame because of it anymore.

    Know how far you’re willing to step outside of your comfort zone. If you want to try new things, find out what you can do to work around your limitations, but know that it’s okay to stay comfortable as long as you’re in a good place for you.

    The truth is life isn’t easy. It’s full of uncertainty, trials, and craziness. So much craziness.

    Even though life may deal you a hand that doesn’t seem fair, there is always a way to get through even the darkest moments. Keep hope alive and search for a way to push through.

  • 8 Ways You Can Help Fight the Loneliness Epidemic

    8 Ways You Can Help Fight the Loneliness Epidemic

    “The antidote to loneliness isn’t just being around random people indiscriminately, the antidote to loneliness is emotional security.” ~Benedict Wells

    Emotional security. The feeling of being at home in the presence of another. Safe to be who you are, good times or bad. Feeling seen and seeing the other clearly, accepting the other’s whole lovely mess. It’s good stuff, and it can be hard to find.

    In fact, ever-increasing loneliness stats have led many experts to describe the problem as epidemic. You might assume it was caused by the pandemic, but it was a crisis long before lockdowns and social distancing.

    In 2018, Cigna conducted a survey of U.S. adults and found that loneliness was at 54%, already at epidemic levels. Since then, it shot up to 61% in 2019, with three in five Americans reporting feeling lonely, and now sits at 58%—we’ve got ourselves a big problem. And it’s not just the fact that it’s unpleasant to feel disconnected from others and not have anyone to talk to; research also shows it’s also bad for our health.

    As someone who went thirty-seven years not knowing I’m autistic, for most of my life I’ve hidden a lot of who I am (masking), making it impossible to feel truly connected and seen. So, despite formerly frequent socializing, I’ve been exceedingly familiar with feeling lonely for most of my life.

    However, when health issues took me out of the day-to-day world altogether in 2015, I was surprised at how much worse it got. At first, rarely interacting with others was largely a much-needed relief, but a few months in, things got dark. I was communicating with the people I knew so little—sometimes it’d be months—that I felt ungrounded, like I could just disappear, or die, and no one would even know I was gone.

    When I did get to talk to the people who I then considered close, it often felt like I wasn’t really allowed to talk about my life anymore because it’d become too sad. (So cringe. Positive vibes only.)

    Even with the support of a therapist, feeling so alone in what I was going through made me feel like my life didn’t matter. And it’s not that I was associating with awful humans, it’s just how we’re socially conditioned. Society prioritizes seeming-pleasantness to a severe degree, and as a result most folks have no idea how to hold space for the hard stuff. We just aren’t taught to be emotionally equipped for providing that kind of support; instead, the general example is to repress and deflect.

    It’s like we’ve decided compassion is inefficient and awkward, instead honoring placid insensitivity as a virtue. And, as a result, people feel like it’s not safe to talk about what’s really going on in their lives, what they’re really thinking and feeling. This, of course, creates loneliness.

    Eventually, after half a decade of dealing with severe health and life trauma in isolation, I was diagnosed with autism, which was amazing in many ways… but also a core-shaking thing to handle with only the support of online groups and a telehealth therapist who had dozens of other clients. It was too much to process, and I had a nervous breakdown.

    Afterward, I accepted that I needed to work harder to find people I could regularly and, especially, authentically connect with. It took some time, but I eventually found aligned friends via reaching out to people I didn’t actually know all that well (yet) but had met through very authentic circumstances.

    Routinely talking and connecting with them has changed my life. I’m still homebound for health reasons, and it’s still hard, but despite still being without human company like 95% of the time, I don’t feel like I could just float away anymore; I now feel warmly and safely connected, even seen and understood.

    Honestly assessing if I had people with the bandwidth to connect regularly, that also know how to hold the kind of safe-feeling emotional space I need, was the first step to having consistent connection with people who let me be my whole self; relationships that do provide that precious and hard-to-find feeling of emotional security—progressively replacing my loneliness with connected perspective, understanding, and acceptance.

    If your honest self-assessment comes to the same conclusion as mine—“I need to confront this loneliness thing”—these sorts of authentic-connection-seeking efforts can do the same for you.

    8 Ways to Combat the Loneliness Epidemic

    1. Honestly assess your needs.

    Do you feel lonely? What do you need to feel socially connected? Which interactions leave you feeling drained and which ones lift you up, making you feel less alone? Do you feel safe to be your whole self with the people in your life? What are some characteristics of those who’ve made you feel safe?

    2. Reach out (and reach back).

    Once you’ve got an idea of what you need, reach out to someone who makes you feel relaxed, safe to just be you, and see if they want to catch up. Maybe they’ll be down for it, and maybe they won’t, but keep trying.

    If you don’t really know anyone you feel safe to be authentic with, try joining like-minded activity groups or using a platonic friend-finding app. And if someone who seems safe reaches out, don’t let fear stop you from reaching back.

    3. Set and respect boundaries.

    What you need from someone and what they’re able to provide might not mesh. It’s important to understand that some of us are comfortable with having open, potentially vulnerable, conversations, and others prefer to stick to more shallow waters. And the same is true for the reverse.

    It’s okay to prioritize time with those who connect in a harmonious way and also to distance yourself where needed. Life is pretty demanding and people can only do so much, so try not to take it personally if people can’t meet what you need, and let others (gently) know when you can’t meet theirs.

    4. Practice ‘holding space.’

    Make sure you’re present enough to really listen and ensure you’ve understood and/or been understood (we rely far too much on easily misinterpreted nonverbal communication).

    Learning to stay in the moment—resisting deflection, going into judgment or fix-it mode—is crucial to creating authentic connection in your life (and that includes holding space for your own honest, but difficult, emotions).

    It can be scary to hold space, and/or ask someone to, but we need to get over our societal fear of awkward experiences; isn’t it worth it when it could lead to connection, growth, and clarity?

    5. Resist the pressure to lean on small talk.

    It can be tempting to stick to trivial matters, but it’s not without harm. I concur with the take on small talk that Natasha Lyonne shared on an early February episode of Late Night with Seth Meyers:

    “I don’t believe in it. I would say I aggressively don’t like it. I think it’s damaging to society as a whole… it’s like John Lennon said, just gimme some truth. I think it’s really dangerous because when you ask a person ‘How are you?’ their only option is to lie aggressively, right? Society says you’re supposed to say, ‘Oh, I’m good’ and keep it moving, but you’re not good, are you?”

    It’s isolating that we’re expected to talk in pleasantries, especially since it often happens even in relationships considered close.

    6. Gossip doesn’t count as connection.

    In the same interview, Meyers fights for small talk as a segue into shit-talk, and Lyonne suggests that maybe instead of talking about other people they could segue into some other talk (she suggests inanimate objects, which I don’t hate).

    Our society depends on gossip far too much. People very often rely on it to judge another’s trustworthiness, a fact that is manipulated all the time. And if you’ve ever played the game “telephone,” you know it’s not exactly a science to depend on hearsay.

    Real conversations, asking direct questions, can be intimidating—but it’s a hell of a lot better than writing someone off because of what so-in-so told so-in-so. Also, gossip isn’t connection. It might feel like fleeting togetherness à la “we hate them,” but you know your shite-talking cohort’s talking about you as well. It’s fake. If gossip’s the primary mode of convo, you’re just flapping jaws.

    7. Reflect on and articulate your feels.

    When we don’t understand why we feel alone, it makes it much harder to address, so it’s unfortunate that introspection is underrated in our society (sometimes even ridiculed, which is revealing).

    Gaining emotional awareness and being able to express our feelings is key to reducing loneliness. To quote sociological researcher Brené Brown, “The more difficult it is for us to articulate our experiences of loss, longing, and feeling lost to the people around us, the more disconnected and alone we feel.”

    When we don’t have the words to describe our emotional experience, emotional communication becomes foreign—but by gaining emotional awareness and vocabulary, that kind of connection becomes possible.

    Crucially, we must know that it’s okay to feel whatever it is that we feel, as many of us are taught that emotions like anger or fear aren’t okay. They are. Using tools like the emotion wheel, journaling, and therapy can be of great assistance, as well as opening up to trusted others and holding space when they open up to you.

    8. Know (and love) yourself to connect authentically.

    Finding relationships where I felt supported the way I needed to be involved a lot more time getting to know myself than I thought it would; tons of self-reflection and, ironically, solitude were necessary for me to find the self-acceptance it takes to have any shot at finding authentic support.

    To again quote Brené Brown, “Love is not something we give or get; it is something that we nurture and grow, a connection that can only be cultivated between two people when it exists within each one of them—we can only love others as much as we love ourselves.”

    As far as how to get started on fostering self-love, I think all love grows from appreciation, something many of us find hardest when it’s pointed in our own direction. Appreciate your efforts to choose growth by reading articles on a website like this over mindless scrolling, or reaching out for connection instead of your favorite escape. And acknowledge your needs in addition to your efforts. You deserve love (the whole you).

    Self-reflection and cultivating emotionally secure relationships inherently involves vulnerability, but our social norms dictate staying away from that—safe in the shallows of small talk, leaving the depths to be explored in fifty-minute therapy slots by a complete stranger who won’t have the same security with you (if you’re lucky enough to have the coverage).

    While therapy can be very helpful, emotional support shouldn’t primarily be found at a price as one of many clients on a therapist’s roster. We need to have the emotional tools to express our feelings and support another’s.

    And, in addition to our individual efforts toward authentic connection, we, as a society, need to recognize the costs of mass loneliness and prioritize having a populace that knows how to be there for each other in good times and bad. It’s time to learn how to allow space for authentic connection in our lives and relationships. We need it, we deserve it, and we can do it.

  • Ethan, a 6-Year Old Boy with Autism, Plays Piano Man

    Ethan, a 6-Year Old Boy with Autism, Plays Piano Man

    Ethan is only six years old, and he has autism, but you’d never think in watching this video that he’s disabled in any way. He’s vibrant, amazingly talented, and inspiring beyond belief! I love that he’s wearing a Superman shirt, because this beautiful little boy is my new hero.

  • Fireflies: An Inspiring Short Film by The Jubilee Project

    Fireflies: An Inspiring Short Film by The Jubilee Project

    Since I have a chronically bleeding heart dripping down my sleeve, it’s not hard to get me teary eyed, but this video by The Jubilee Project really moved me. It’s both a touching short film, and a project with a great cause: building autism awareness.

    From the YouTube Page:

    “Fireflies” is a simple reminder that we each have beauty and can connect with others in unique ways. It is the passing glance of a stranger, the earnest offering of a flower, and the knowing smile of a shared secret. In “Fireflies,” a young boy and his new autistic friend discover a shared language of their own.

  • Inspiring Graduation Speech from a Sixth Grade Boy with Autism

    Inspiring Graduation Speech from a Sixth Grade Boy with Autism

    In his sixth grade graduation speech, Eli Rosenberg shares what he’s learned about overcoming obstacles and making a difference, and offers a challenge that every one of us can meet. What a beautiful and inspiring message!